I-DSD/I-CAH news alert - June 2017

Welcome to the June news alert

Update on current activities in the I-DSD and I-CAH registries.  If you have an item you would like to include in future alerts, please contact Jillian.Bryce@glasgow.ac.uk

I-DSD symposium, Copenhagen 29th June-1st July 2017

With less that 2 weeks to go, the countdown to I-DSD 2017 is on.  Over 50 oral presentations and 70 posters on topics ranging from psychology, genetics, endocrinology, surgery and more.  The full programme is available on the symposium website (www.gla.ac.uk/idsdsymposium). Around 200 participants already registered. On-line registration is available until 22nd June (idsd2017.eventbrite.co.uk)

Up to 15 EAC-CME credits.


I-DSD Training Workshop

A separate workshop aimed at new investigators takes place in the morning of Thursday 29th June.  Small groups will rotate around 3 workshops covering the topics 'Use of the registry', 'Bioinformatics' and 'E-Learning'. There are still a few spaces available.  To sign up go to idsd2017.eventbrite.co.uk. Registration is £30 and includes lunch.  

Talking Point

Is fertility preservation right for children with DSD?

Young people with DSD may face infertility from abnormal development of testes or ovaries, and in some these organs are removed to address an increased risk of germ cell cancer. With advancing techniques, however, these young people may be able to preserve their fertility for the future. This also presents some important clinical issues and these were recently discussed in a recent paper in the Journal of the Endocrine Society. This area will also be covered at the I-DSD meeting in Copenhagen.

Office for Rare Conditions

The Office for Rare Conditions in Glasgow was launched  in early 2017. Its remit is to improve the standards of health care and research in those with rare conditions. I-DSD and I-CAH activities are supported by the Office. Follow the Office on Facebook www.facebook.com/ORCGlasgow

University of Glasgow

Office for Rare Conditions

Royal Hospital for Children & Queen Elizabeth University Hospital


Tel: +44 141 451 5843