I can't speak for anyone else, but as someone who lives with chronic illness, here are the two biggest things I wish that people didn't say to me:
1 // "Have you tried...?"
Or any way of offering advice to someone who did not explicitly ask for it. Assume that the person you are talking to is the expert in their own care. Instead of offering advice, say nothing! Don't give people unsolicited advice, like, in any venue. If you really can't help it, ask, "Would you like some ideas?" and then respect the answer.
2 // "Feel better soon!"
Or any other things that imply hope for a change. I will probably feel better soon, and then I will feel bad again soon after that. That's how chronic illness works. I truly appreciate the well wishes, but sometimes I feel like a disappointment in that I don't have some big hope for brighter days. It's hard enough trying to meet reality as it is. Instead, try something like, "Sending love!" or "Thinking of you!"
All of this stuff is super well-meaning, and I know that. But while the intention is good, the impact can be rough. Thanks for listening! đź’“
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