Good Diagnosis
Genetic Alliance UK have launched their new report 'Good Diagnosis: Improving the experience of diagnosis for people with rare conditions'. The report identifies key principles of a good diagnosis and makes recommendations to improve the experience of diagnosis.
You can read the full report here.
Rare Disease Day
Rare Disease UK were delighted so many people and organisations took part in this year's Rare Disease Day events!
You can see our Rare Disease Day 2022 Highlights and our 'Shining a light on rare conditions' programme in partnership with ITN Industry News, on the Rare Disease UK website
Rare Resources Information Day
Join Genetic Alliance UK for an informal virtual information day on Wednesday 30 March 2022.
Register here to sign up for this 'drop in' event where you can find out more about information and support services in Scotland for people living with rare, genetic and undiagnosed conditions.
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