What's going on

Support Group - thank you to Feeding Matters

We were so glad to welcome Feeding Matters to come speak to transplant families and Mended Little Hearts families.  If you had the chance to see our meeting, we would appreciate your feedback.  In return, your name will be put in a drawing to win a prize.  https://www.surveymonkey.com/r/KN6HV6H

Upcoming Events

Transplant Families Resource Fair

Join us for for one of our favorite events of the year.  A chance to celebrate Donate Life Month with all the community organizations that support pediatric transplant.  Have a chance to meet with all of these organizations, get information and resources and visit with other transplant families.  Plus there will be several prizes given away during the event.

We are honored to have guest speaker psychologist Dr. Brenda Aranda speak on "How to gain resiliency through your child's transplant journey".  We are also proud to finish our program with a speaker and a donor family from Donate Life Arizona. 

As always food and childcare provided.  Get tickets today (https://transplantresourcefair.eventbrite.com)

National Pediatric Transplant Week

April 23-27, 2018:  Join us in celebrating a new observance during the last week of National Donate Life Month: National Pediatric Transplant Week.  National Pediatric Transplant Week grew from the question "Can we as a national Donate Life Community create a dedicated observance to raise awareness and help save the lives of children waiting for transplant?"

This week offers donation and transplantation organizations the platform to talk about the powerful message of ending the pediatric waiting list, to engage clinical partners to share their innovative work and patient stories (candidates and recipients), and to honor donor families whose children have saved and healed lives through organ, eye and tissue donation.

National Pediatric Transplant Week gives pediatric donor and recipient families an opportunity to share their stories,encourage others to help save and heal lives by registering to be organ, eye and tissue donors and to learn more about becoming a living donor. 

Share your stories of inspiration with hashtag #KidsTransplantWeek.  And continue to check out site (http://transplantfamilies.org/events/nptw/) for more information on the toolkit.

Webinars, papers and more...

In addition to the resource fair, we are having educational resources being released all week to honor a brand new awareness week, National Pediatric Transplant Week.  Even though these webinars are labeled "transplant" they apply to many different disciplines and we welcome you to sign up to view either live or get the recording by mail and view at your convenience.  The information is listed here https://tinyurl.com/KidsTransplantWeek:

On Monday, April 23st , Phoenix Children’s Hospital and Transplant Families will host a Facebook post airing of our Resource Fair Keynote Building Resiliency Through Your Child’s Transplant Journey with speaker Dr. Brenda Aranda, Ph.D., Director Cardiology Behavioral Medicine Cardiology Department at Phoenix Children’s Hospital and Assistant Professor: Child Health University of Arizona College of Medicine.

Click here to view: https://www.facebook.com/PhoenixChildrensHospital/

On Monday, April 23rd from 12-1pm EST, CCF will host a webinar on child life services. Brittany Smith, MA, CCLS, Child Life Specialist at Ann & Robert H. Lurie Children’s Hospital, will be the guest speaker.

Click here to register: https://register.gotowebinar.com/register/4403374034947684865

On Tuesday, April 24th from 12-1pm EST, CCF will host a webinar on medical adherence and transition of care. Dr. Diana Shellmer, Ph.D., associate professor of surgery and psychiatry with the Hillman Center for Pediatric Transplantation, Children’s Hospital of Pittsburgh of UPMC, will be the guest speaker.

Click here to register: https://register.gotowebinar.com/register/317525054145631489

On Wednesday, April 25th Sisters by Heart will publish a practioner’s post on Fontan to Transplant. Dr. Kurt Schumacher, MD MS, assistant professor and Medical Director of Pediatric Heart Failure and Transplant Program, University of Michigan Congenital Heart Center and C.S. Mott Children’s Hospital, will be the guest author.

Click refer to http://www.sistersbyheart.org/content/practitioner-posts for more information.

We may have late additions near the end of the week. We will follow up if we get notice of these additions.  Feel free to ask me any questions.

Transplant Families Golf Tournament

Mark your calendars for a beautiful day of golf.  Enjoy a day out with your friends and support a great cause.   Transplant families is proud to host our first annual golf tournament.  It will be held at the beautiful Stone Creek Golf Club in Paradise Valley, AZ.  Join us April 28th at 7:30 am for a shotgun start.  Buy your tickets or get your sponsorship opportunity today on our website https://shop.transplantfamilies.org 

Transplant Olympics 2018

Join Transplant Team Arizona (http://www.transplantteamaz.org/) and our friends at New Life Society (https://newlifesociety.org/) as they help guide us on the road to victory at the Transplant Olympics 2018 (http://www.transplantgamesofamerica.org/) in Salt Lake City, Utah - August 2nd through 7th.  There are many ways to contribute or volunteer in this amazing celebration of life.  Please visit any one of these websites for more details.

Next Support Group meeting

Come and join us for our next support group meeting.  August 22nd from 5 to 6 pm in The Zone at Phoenix Children's Hospital.  It is that time of year where our kids will be back to school and that means renewing of 504s and IEPs.  Raising Special Kids will have an expert speak at our next support group to help families learn the in's and out's of education starting from qualifying for early intervention to which preschool is best to collaborating with our child's education team to bring them from elementary through high school.  We will also be celebrating the victorious return of our kid transplant Olympians and with a celebration.  

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